Emily's Updates
You're new here, aren't you?
NetworkedBlogs allows you to stay up to date with blogs you love. Click the Follow button to follow updates from this blog.
NetworkedBlogs allows you to stay up to date with blogs you love. Click the Follow button to follow updates from this blog.
Information
| Blog Name: | Emily's Updates |
| Url: | http://blog.hopeforemily.com |
| Language: | English |
| Topics: | spinal muscular atrophy, children, disability |
| Description: | I use this blog to write about my daughter, Emily Hope, who has Spinal Muscular Atrophy - a terminal neuromuscular disease that weakens all her voluntary muscles, including those used for breathing, swallowing, and coughing. I write about her life, b/c it's beautiful. :) |
| Popularity: | 14 Followers |
Blog Feed
Happy Anniversary!! 8 big ones!!
| Happy Anniversary, Diana!! What an amazing 8 years it's been. I can't believe we've already lived a lifetime of events. What in the world can our future hold?!You complete our awesomeness. {wink} ;...more |
Happy days :: #SMA
| Well Emily is back to her normal self and better. It's so good to see her well. We are going to e taking it easy this Winter though. Avoiding crowds, enclosed areas, etc. School becomes a bigger ch...more |
Please help our friend! :) #SMA
| ---- From a friend ----Hi all:This is Brenda emailing from Nationwide Children's Hopsital in Columbus, OH yet again. I am writing to get your help.MJ was re-admitted to the hospital after 2 weeks ...more |
Hope for Emily Jewelry - Winter 2009
| Hey there - I wanted to quickly announce that Diana has started selling the Winter '09 collection of Hope for Emily jewelry. Hurry to get your order in!! Orders must be received by Nov. 30th to b...more |
Keep on keepin' on #SMA
| Hey folks, we're doing pretty well these days. Emily has been spending less and less time on BiPAP, she's much happier and interactive than the past couple of weeks, and hopefully she'll be back in...more |
Visit the
blog page on Facebook.
Popular in:
Not enough data.
Calculated for blogs with 20+ followers.
Calculated for blogs with 20+ followers.
Related Blogs
Questions? contact: networkedblogs@ninua.com
Copyright (C) 2008, Ninua, Inc.