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The song of our lives...
| This song by Rob Thomas pretty much sums up how I feel about the situation with our girls...SomedayYou can go You can start all over again You can try to find a way to make another day go by You ca... |
Anna and her new walker!
| Anna received her KidWalk Gait Trainer yesterday and we already LOVE it! Anna does SO well in it and has already begun to take steps on her own!!! Here is a video I took of her this morning! Bef... |
Thoughts
| I've come to realize that if I look at what "could have been" it just makes my life a million times harder. It's pretty tough not to see things that make me wish we could have just been as normal ... |
Started the Ketogenic Diet- our hospital recap
| We called Monday morning and the hospital said her room was ready. So we leave and head straight to the lab, which they told me to do before we checked in. There were no orders for her labs, so tha... |
PICTURES!!!
| I'm going to show everyone some pictures I took today! We had an impromptu photo shoot in our living room window today and I think they turned out GREAT! |
Just a short post to catch up
| Ayva had another EEG yesterday which still showed her having hypssarythmia (which is the abnormal brain wave pattern associated with Infantile Spasms). And even though we aren't noticing really an... |
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