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LilyAnna Blu

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Blog Name: LilyAnna Blu
Url: http://lilyannablu.blogspot.com
Language: English
Topics: special needs child, epilepsy
Description: Hi! I am LilyAnna Blu! I am 6 years old and am a very special little girl. Come read all about my life!
Popularity: 7 Followers

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Too tired to be wordy
I dx Oliver this weekend with roseola. He got a rash Saturday evening after his mysterious high fever went away. I remembered Lily having that when she was a baby and so I googled it and sure enough he had every freaking symptom. I called the on call nurse just to be sure the rash wasn't something to worry about, but she agreed he sounded like it was roseola. He seemed himself again today, finally! We will see though tonight. He has been getting up and just not going back to sleep. I feel like I'm taking care of a newborn again and pray tonight he goes back to a blissful 12 hour stretch of sleep.Lily is not sleeping all that well lately either and it really shows in her attitude durin
Sad Days
So it’s been a bit of a sad day. Oliver is sick. He spiked a fever Tuesday night and it has been going on ever since. He has a cough, runny nose and high fever. Last night was 103 and tonight it was the same. But when the Motrin kicks in he is a wild man. 2 hours ago he was hot, whiney and clingy. Now it is 8:30pm and he is crawling and climbing, playing peek-a-boo all the while his big sister is fast asleep in bed. Andi Jane went to stay at the rental Grandma and Grandpa Nothdurft are staying in. I thought I’d be in bed by now watching Grey’s Anatomy but little man has other plans. He sure is cute. Lucky!What was really sad today was the discussion I had with Andi Jane. Andrew a
Gait Trainer
So Andrew asked Lily's PT if she thought Lily was ready for a walker. I wasn't quite sure she was ready for that, but her PT brought over a loaner to see. It is way too small for her, but we were just seeing what she would do in one and to see if it is justifiable to try to order one. Well let me show you how she did!**be patient she will get into the light after a few seconds, I'm gonna need to ask for a good digital video camera for my birthday**
Holy Spearmint
Last week started out poorly. I took all three kids on Tuesday to get Lily’s x-ray for her Shriners apt on Friday. Shriners runs a clinic one day every three months so as you can imagine there are a lot of patients, making it a long day. I was trying to be proactive by getting Lily’s x-rays done earlier. I was a dummy bringing all kids. I had Oliver eating fake plants, Andi chasing him being very loud. I had to have a guy help me get Lily out of her chair b/c there was no where for Oliver to go but in the Bjorn on my chest. Then on the x-ray table the tech said her diaper was dirty and can I take it off. Of course her diapers were in the van! Of all the times for her to poop! We had her
Wishes in the Dark - Author Unknown
Sometimes when she's sleeping I can see in my mind's eye the little girl I thought I had, the one who said good-bye.Sometimes when she's sleeping, hands folded by her cheek I close my eyes and see before me a child who can speak.Sometimes when she's sleeping she seems so whole and well I can't believe she won't awaken with dreams of which to tell.Sometimes when she's sleeping and the tears in my eyes overflow, I steal what kisses I can in the darkand wonder what joys she will know.Sometimes when she's sleeping and my eyes ache with tears unshed, I pray she'll always be full of peace as she slumbers in her bed.Someti

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