Phoenix's Fight
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| Blog Name: | Phoenix's Fight |
| Url: | http://www.phoenixsfight.blogspot.com |
| Language: | English |
| Topics: | Cystic Fibrosis, Children, Genetics |
| Description: | On April 30, 2008 our beautiful little boy Phoenix entered our lives. Little did we know the journey we were about to be on. Phoenix was born with a genetic condition called Cystic Fibrosis. Through the ups and downs he continues to show us how strong he is. This is his journey! Phoenix may have CF but CF will never have Phoenix! Together we will make CF stand for cure found! |
| Popularity: | 75 Followers |
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MIA
Yes, I've been MIA this week! I started learning some of the tasks for my new job! I am so excited to get started and begin working with some of the families. I have
Yes, I've been MIA this week! I started learning some of the tasks for my new job! I am so excited to get started and begin working with some of the families. I have
Wow!
There are so many times in life that we let opprotunities pass by. My goal in life is to not let another second go by with out jumping up for the opportunities! Taking life for today and loving the ones we have in our lives.There have been so many times this past week that my eyes have been opened to missed possibilities, moments that I can never get back. Things that I have learned from.
There are so many times in life that we let opprotunities pass by. My goal in life is to not let another second go by with out jumping up for the opportunities! Taking life for today and loving the ones we have in our lives.There have been so many times this past week that my eyes have been opened to missed possibilities, moments that I can never get back. Things that I have learned from.
Roni & Mandi
Awhile back I told you about Phenny's friends Ronnie and Mandi! Phenny loves to do treatments to some of their greatest road tunes! (Even if they haven't updated them in awhile!) Well they recently had something very exciting to celebrate! Click HERE to watch the video
Awhile back I told you about Phenny's friends Ronnie and Mandi! Phenny loves to do treatments to some of their greatest road tunes! (Even if they haven't updated them in awhile!) Well they recently had something very exciting to celebrate! Click HERE to watch the video
Pat
Please continue to keep Pat and her families in your prayers. Pat has been missing for a week, searches will get together again today at the Horton Fire Dept. Any and all help is greatly appreciated.Anyone with information about the case may contact Sheriff John Calhoon at (913) 367-4323, the Topeka Police Department's Crime Stoppers hotline at (785) 234-0007, or the Kansas Crime line at (800) KSCRIME.Click
Please continue to keep Pat and her families in your prayers. Pat has been missing for a week, searches will get together again today at the Horton Fire Dept. Any and all help is greatly appreciated.Anyone with information about the case may contact Sheriff John Calhoon at (913) 367-4323, the Topeka Police Department's Crime Stoppers hotline at (785) 234-0007, or the Kansas Crime line at (800) KSCRIME.Click
CF Question! Help!
Phoenix ended up making a visit to the hospital today. He's home and I'll update again soon, but I could really use some advice. Phoenix has a O2 and heart monitor, and while yes it's portable the battery does not last long. (this is our second one, the last battery completely quit!) We live almost 1hr 45m from the hospital. On regular trips he's fine, but on trips like today he really needed to have it checked off and o
Phoenix ended up making a visit to the hospital today. He's home and I'll update again soon, but I could really use some advice. Phoenix has a O2 and heart monitor, and while yes it's portable the battery does not last long. (this is our second one, the last battery completely quit!) We live almost 1hr 45m from the hospital. On regular trips he's fine, but on trips like today he really needed to have it checked off and o
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