Phoenix's Fight
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Information
| Blog Name: | Phoenix's Fight |
| Url: | http://www.phoenixsfight.blogspot.com |
| Language: | English |
| Topics: | Cystic Fibrosis, Children, Genetics |
| Description: | On April 30, 2008 our beautiful little boy Phoenix entered our lives. Little did we know the journey we were about to be on. Phoenix was born with a genetic condition called Cystic Fibrosis. Through the ups and downs he continues to show us how strong he is. This is his journey! Phoenix may have CF but CF will never have Phoenix! Together we will make CF stand for cure found! |
| Popularity: | 97 Followers |
Blog Feed
Moving Forward
| Today some wonderful news came from Vertex Pharmaceuticals! The research from Phase 2a trial of VX-809 is showing some very promising results!Click HERE to read the article from the CF Foundation.C... |
Jaxson
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Phenny's amazing little friend Jaxson was admitted into the hospital. Please keep his wonderful mommy and Jaxson in your prayers.You can click on Jaxson's button to visit his blog and leave words... |
Honest
| I must apologize for not updating a lot lately. I need to be honest. This entire process is really starting to be difficult.Between fighting with insurance to cover things, taking a huge cut in nur... |
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