Moyamoya? Oh my.

We met with Polly’s surgeon
and I saw the inside of my daughter’s brain on a computer monitor. Yesterday, Polly, Sergei and I trekked off to  Children’s Memorial Outpatient Clinic on Clark Street to meet with Dr. Alden, Polly’s Neurosurgeon.  His full name is Tord Alden, which sounds really smart to me.  A good sign. I was surprised that Polly’s blood vessels are quite thin on both sides of her brain.  Her Moyamoya is more advanced than I t

Orphan Sunday
LERA, Girl, Born August 7, 2005 And if this one specific child doesn’t have a family committed to her adoption within the next few days, she will be sent to a mental institution where she will then be unadoptable and ’sentenced’ to a crib for the rest of her life. Here’s a little about her: Lera is a gorgeous little girl with blonde hair and blue eyes. She is 4 years old. She is quite high functioning, and doing very well. She has flat feet and a systolic heart

Thanks for the prayers…she’s home!
Thanks so much to all who prayed for Polly’s angiography test yesterday.  I’m happy to report she got through the test stroke and seizure free and came out of anesthesia fairly well.  Of course, she was made that she was pinned down for four hours.  She wasn’t allowed to move the leg the catheter went through for the test.  I was able to be up at the hospital with Sergei when she woke up.  I came back home around 6:30 to to be with the other girls (thanks, Jessica, for helping us out with childcare!). Sergei and Polly came home from the hospital around 9pm. So now, we need to hear the results from her doctor and plan the first surgery.

Polly’s angiography test on Wednesday
This weekend I was grouchy.  I tried  not to be…I prayed and cleaned, did yoga and attempted to interact with the family…but my stomach was uneasy.  I just felt mad. Today I got a call from Children’s Memorial Hospital regarding Polly’s test that will take place tomorrow at 12:30pm.  As I sifted through details on the phone with the nurse; no solids after midnight, no drinks after 9:30am, yes to medications, no to aspirin, it dawned on me that my grouchy attitude started last Friday and has become more pronounced up until today.  On the phone with the nurse, realizing that Polly is back in t

Polly update
Polly is doing well. It’s hard to believe that a week and a half ago she was using both of her hands to lift up her right leg and move it.  As Polly was leaving for school this morning she was practically running out the door. Looking at her a person would be hard pressed to see that she has Moyamoya and requires pending brain surgery. Yesterd